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Practice Guideline Guideline
Guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients.
- Peter Hudson, Cheryl Remedios, Rachel Zordan, Kristina Thomas, Di Clifton, Michael Crewdson, Christopher Hall, Tom Trauer, Amanda Bolleter, David M Clarke, and Catherine Bauld.
- Centre for Palliative Care at St. Vincent's Hospital, The University of Melbourne, Melbourne, Australia. phudson@unimelb.edu.au
- J Palliat Med. 2012 Jun 1; 15 (6): 696702696-702.
BackgroundSupport for family caregivers, including bereavement follow-up, is a core function of palliative care. Many caregivers acknowledge positive aspects associated with the role; however a considerable proportion will experience poor psychological, social, financial, spiritual, and physical well-being and some will suffer from complicated grief. Many family caregivers have unmet needs and would like more information, preparation, and support to assist them in the caregiving role. There is a shortage of evidence-based strategies to guide health professionals in providing optimal support while the caregiver is providing care and after the patient's death.PurposeTo develop clinical practice guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients.Methods(1) Literature review; (2) focus groups and structured interviews with key stakeholders within Australia; (3) national and international expert opinion to further develop and refine the guidelines using a modified Delphi process; and (4) endorsement of the guidelines from key palliative care, caregiver, and bereavement organizations (national and international).ResultsThe guidelines were developed for multidisciplinary health care professionals and clinical services commonly involved in caring for adult patients receiving palliative care in a variety of care sites throughout Australia. These consensus-based guidelines have been endorsed key Australian and international organizations.ConclusionsThe guidelines may prove valuable for the international palliative care community and for generalist health care providers who occasionally care for palliative care patients. Research is recommended to explore the uptake, implementation, and effectiveness of the guidelines.
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