• Esther A Boudewijns, Danny Claessens, van Schayck Onno C P OCP Department of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht University, P.O. Box 616, 6200, MD, Maastricht, the, Lotte C E M Keijsers, Philippe L Salomé, In 't Veen Johannes C C M JCCM Department of Pulmonology, Franciscus Gasthuis & Vlietland, Rotterdam, The Netherlands. , Bilo Henk J G HJG Department of Internal Medicine, University of Groningen, University Medical Centre Groningen, Groningen, The Netherlands., and Annerika H M Gidding-Slok.
• Department of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht University, P.O. Box 616, 6200, MD, Maastricht, the Netherlands. esther.boudewijns@maastrichtuniversity.nl.
• Bmc Fam Pract. 2020 Jan 13; 21 (1): 11.

BackgroundNumerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates self-management is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice.MethodsRequirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations.ResultsThe ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations.ConclusionsThe ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations.

26 keywords...

hide…