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Palliat Support Care · Aug 2018
ReviewThe experience of informal caregivers of patients with motor neurone disease: A thematic synthesis.
- Lucy Holkham and Andy Soundy.
- School of Sport, Exercise, and Rehabilitation Sciences,University of Birmingham,Birmingham,United Kingdom.
- Palliat Support Care. 2018 Aug 1; 16 (4): 487-496.
AbstractABSTRACTObjective:Research is required in order to illustrate and detail the experiences of informal caregivers of patients with motor neurone disease (pwMND) to further advance the research base and to inform the development of future support structures and services. Due to the heterogeneous nature of caregiving for pwMND, one way in which this can be achieved is through a qualitative review. A qualitative thematic analysis of existing qualitative studies has not, to the best of the authors' knowledge, been previously undertaken. Thus, the present synthesis aims to identify caregivers' experiences and to suggest factors that contribute to these experiences in order to fulfill the required research needs.
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