• Palliative medicine · Dec 2021

    'It was like taking an inner bath': A qualitative evaluation of a collaborative advance care planning-approach.

    • Pedrosa CarrascoAnna JAJhttps://orcid.org/0000-0002-4757-9019Study Group Ethics in Medicine, Philipps-University Marburg, Marburg, Germany., Martin Koch, Teresa Machacek, Anna Genz, Svenja Herzog, Jorge Riera Knorrenschild, Pia von Blanckenburg, and Carola Seifart.
    • Study Group Ethics in Medicine, Philipps-University Marburg, Marburg, Germany.
    • Palliat Med. 2021 Dec 1; 35 (10): 1897-1907.

    BackgroundImpaired readiness may hinder purposeful advance care planning in cancer patients. To reduce barriers to participation in end-of-life decision-making, a collaborative intervention was developed combining a psycho-oncological approach of dignity-based and cognitive-behavioural interventions, followed by a standardised advance care planning-process.AimTo evaluate the novel collaborative advance care planning-approach by synthetising cancer patient and carer perspectives on communicational and relational effects.DesignAs a sub-project of a mixed-methods evaluation study, we conducted an inductive content analysis of qualitative interviews with advanced cancer patients and caregivers to deeply explore the focused impact of a collaborative advance care planning-approach on communication and relationship dynamics.Setting/ParticipantsTwelve patients with advanced cancer and 13 carers who participated in a collaborative advance care planning-intervention.ResultsThe collaborative advance care planning-approach was consistently evaluated positively by participants. Transcriptions of the semi-structured interviews were coded, analysed and merged under three main themes concerning communicational and relationship dynamics: action readiness, content readiness and impact on future communication and relationship.ConclusionsThe novel intervention served to foster individual readiness - including action and content readiness - for advance care planning-discussions by addressing highly individualised barriers to participation, as well as specific end-of-life issues. In addition, societal readiness could be promoted. Although the brief psycho-oncological intervention could not fully meet the needs of all participants, it can be used to develop individual psychotherapeutic strategies to improve different facets of readiness. The collaborative advance care planning-approach might require more time and human resources, but could pioneer successful advance care planning.

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