• Emily Harrop, Silvia Goss, Damian Farnell, Mirella Longo, Anthony Byrne, Kali Barawi, Anna Torrens-Burton, Annmarie Nelson, Kathy Seddon, Linda Machin, Eileen Sutton, Audrey Roulston, Anne Finucane, Alison Penny, Kirsten V Smith, Stephanie Sivell, and Lucy E Selman.
• Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.
• Palliat Med. 2021 Dec 1; 35 (10): 1985-1997.

BackgroundThe COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure.AimTo investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic.DesignBaseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data.Setting/Participants711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations.ResultsHigh-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%, n = 422) or their General-Practitioner (60%, n = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%, n = 149)/General-Practitioner support (52%, n = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% (n = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation.ConclusionsPeople bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation.

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