• J Palliat Med · Jan 2014

    Siblings caring for and about pediatric palliative care patients.

    • Erin M Gaab, Glynn R Owens, and Roderick D MacLeod.
    • 1 Health Sciences Research Institute, University of California , Merced, California.
    • J Palliat Med. 2014 Jan 1;17(1):62-7.

    BackgroundThe experiences of young people who have siblings with life-limiting illnesses are not well understood.AimThe study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients.Design And MeasurementSemistructured interviews were administered to participants and analyzed using qualitative inductive thematic analysis.Setting And ParticipantsStudy subjects were 18 siblings of PPC patients aged 9 to 22 living in the Auckland area.ResultsThe siblings of PPC patients held concerns about their siblings' impending death and desires to be involved in their lives and care.ConclusionsSiblings may benefit from opportunities to be involved in conversations about mortality and the care of their ill sibling. They are able to express their concerns and help provide care to PPC patients.

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