Pediatric blood & cancer
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Pediatric blood & cancer · Jan 2007
Multicenter Study Clinical TrialCaregiving time in sickle cell disease: psychological effects in maternal caregivers.
Providing home care for a child with a chronic illness can be stressful for the family. The purpose of this paper is to examine patterns of caregiving and the associated psychological impact on maternal caregivers of children with sickle cell disease (SCD). ⋯ The perceived care burden of caregivers of children with SCD may be related to the unpredictable nature of the crisis care they provide. Additional attention is warranted to developing adequate resources for caregivers of children with SCD to mitigate the stress of unexpected crises.