Pediatric blood & cancer
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Pediatric blood & cancer · Apr 2017
Identifying a conceptual shift in child and adolescent-reported treatment decision making: "Having a say, as I need at this time".
Professional organizations and governments recommend child and adolescent involvement in cancer treatment decision making (TDM) despite minimal evidence that children prefer involvement, how best to include them, and the result of doing so. ⋯ The 'Having a Say' construct challenges the dominant shared TDM paradigm, which presumes it is best to involve children in their treatment decisions. 'Having a Say' is both a developmental and conceptual fit for children that can inform future research to develop and test clinical care approaches to meet child and adolescent communication needs.