Journal of pain and symptom management
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J Pain Symptom Manage · Jul 2022
Validation of 'Care Of the Dying Evaluation' (CODETM) within an international study exploring bereaved relatives' perceptions about quality of care in the last days of life.
Assessing quality of care provided during the dying phase using validated tools aids quality assurance and recognizes unmet need. ⋯ Within an international context, good evidence supports the validity and reliability of CODETM for assessing the quality of care provided in the last days of life.
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J Pain Symptom Manage · Jul 2022
Identification of Distinct Symptom Profiles in Cancer Patients Using a Pre-Specified Symptom Cluster.
Pain, fatigue, sleep disturbance, and depression often co-occur in oncology patients and negatively impact quality of life (QOL). ⋯ Over 55% of patients undergoing chemotherapy had a moderate to high symptom burden associated with these four common co-occurring symptoms. Multimodal interventions are needed to decrease symptom burden and improve QOL outcomes in these patients.
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J Pain Symptom Manage · Jul 2022
Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States.
Given workforce and funding constraints, pediatric hospice and palliative care clinicians often find challenges providing services for seriously ill children and families, particularly in low resource and rural/remote areas. ⋯ Pediatric hospice and palliative care clinicians face numerous barriers and may benefit from a coalition that provides networking and tailored education.
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J Pain Symptom Manage · Jul 2022
Tailoring Pain Interference Measurement in People with Cancer: A Feasibility Study.
Most patient-reported outcomes (PRO) are not directly tailored to an individual patient's values, partially because tailored PROs require clinical interviews or are difficult to use in statistical analyses. ⋯ The Precision PRO approach was feasible, more preferred by patients, and showed consistency over a short timeframe. This approach could be used to make PRO assessment in clinical care and clinical trials more patient-centered. Additional research is needed to determine the generalizability of this approach to other outcomes and populations.