The American journal of hospice & palliative care
-
Am J Hosp Palliat Care · Jul 1996
A qualitative evaluation of a bereavement service: an analysis of the experiences of consumers and providers of services in Australia.
This study, undertaken in 1994, involved the development of a qualitative framework to evaluate a bereavement service delivered by Silver Chain Hospice Care Service in Western Australia. Fifty in-depth interviews were recorded with bereaved carers, nurses, and volunteers over a five-month period, and transcriptions of the interviews were analyzed. A constant cooperative analysis of the interview data revealed eight common themes related to consistent experiences of bereaved carers, nurses, and volunteers. ⋯ Experiences are then related to particular program processes and interactions consistently described by consumers and providers. Influences on, and barriers to, valued interactions occurring are discussed and elements of a valued bereavement program from the perspectives of participants in the study described. By highlighting valued elements of the service, important areas of service delivery could be identified and safeguarded in future service development.
-
Am J Hosp Palliat Care · Jan 1996
Case ReportsPain management and psychosocial issues in HIV and AIDS.
My goal for this presentation is to provide an overview of the pain experience of patients with AIDS, including focuses on prevalence, common syndromes, and factors that contribute to undertreatment. As a means to dramatize the impact of pain on quality of life, we'll discuss excerpts from a videotape of one of my patients who eloquently expresses the difficulty he had in getting effective pain treatment, and the impact if finally made. Finally, we'll discuss basic management principles, largely adapted from those developed over the past decades for cancer pain, with a special emphasis on issues related to the management of pain in AIDS patients who have a history of substance abuse.