Journal of palliative medicine
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Multicenter Study
Initial assessment of a new instrument to measure quality of life at the end of life.
We conducted this study to pilot a new multidimensional instrument to assess the quality of life at the end of life. ⋯ We have developed a new instrument to measure the quality of life at the end of life that assesses empirically derived domains that are of demonstrated importance to dying patients, is acceptable to a seriously ill population, and exhibits excellent psychometric properties. Some items related to completion and preparation represent particularly new contributions to quality-of-life measurement.
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To describe the palliative care needs of dying nursing home residents during the last 3 months of life. ⋯ Dying nursing home residents need improved emotional and spiritual care, help with personal cleanliness, and treatment for pain. Efforts to improve end-of-life care in nursing homes should combine traditional palliative care services with increased attention to emotional symptoms and personal care services.
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This study sought to explore the stories of long-term palliative care workers to generate an understanding of their experiences of working in palliative care for an extended period of time. Six health professionals participated in the study, each of whom were currently working in a palliative care service, and each of whom had been working continuously in palliative care services for a minimum of 5 years. ⋯ Results from this study may be helpful to educators and administrators who endeavour to develop and support this workforce. Furthermore, the descriptions provided in this study may provide direction for individuals working in palliative care who may be called on to reflect on their own work trajectory and their commitment to the field.
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Despite the fact that our institution has approximately 40 inpatient deaths per month, until recently virtually no support was provided to families/friends of the deceased. We developed and implemented a comprehensive bereavement program to prepare individuals for the loss and also to support them through the grieving process.
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Tube feeding should always be considered relative to patient goals. Physicians should be prepared to discuss tube feeding as an option bearing in mind what evidence (or lack thereof) exists that tube feeding will help reach such goals.