Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2016
Multicenter StudySpanish Validation of the Care Evaluation Scale for Measuring the Quality of Structure and Process of Palliative Care from the Family Perspective.
A reliable and valid measure of the structure and process of end-of-life care is important for improving the outcomes of care. ⋯ The Spanish CES was found to be a reliable and valid measure of the satisfaction with end-of-life care structure and process from family members' perspectives.
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J Pain Symptom Manage · Mar 2016
Development and Evaluation of the Psychometric Properties of the CKD-MBD Knowledge and Behavior Questionnaire (CKD-MBD-KB) for Patients with Chronic Kidney Disease.
Chronic kidney disease-mineral and bone disorder (CKD-MBD) is one of the most complicated morbidities among patients with end-stage renal disease. At present, a specific questionnaire assessing relevant knowledge and behavior for patients with CKD-MBD is still unavailable. ⋯ This CKD-MBD-KB questionnaire has been confirmed to have adequate psychometric properties (good reliability and validity) and may be useful in the assessment of patient-related knowledge, intervention programs, and treatment protocols.
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J Pain Symptom Manage · Mar 2016
Multicenter Study Comparative StudySymptom Clusters from Dialysis to Renal Transplantation: A Five-Year Longitudinal Study.
Patients on dialysis experience multiple concurrent and often related symptoms defined as symptom clusters. Renal transplantation (RTX) is thought to reduce symptom experience and improve health-related quality of life. No longitudinal study has assessed symptoms and symptom clusters in patients in the transition from dialysis to RTX. ⋯ Although symptoms and symptom clusters were reduced after RTX, the clinical relevance of the reductions was ambiguous. Symptom clusters could not be generated after RTX, suggesting that use of the KDQOL-SF may not be optimal to assess symptoms in RTX patients.
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J Pain Symptom Manage · Mar 2016
ReviewInterpreting at the End of Life: A Systematic Review of the Impact of Interpreters on the Delivery of Palliative Care Services to Cancer Patients with Limited English Proficiency.
Language barriers can influence the health quality and outcomes of limited English proficiency (LEP) patients at end of life, including symptom assessment and utilization of hospice services. ⋯ LEP patients had worse quality of end-of-life care and goals of care discussions when professional interpreters were not used. More intervention studies are needed to improve the quality of care provided to LEP patients and families receiving palliative services.
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J Pain Symptom Manage · Mar 2016
Dimensionality, Stability and Validity of the Beck Hopelessness Scale in Cancer Patients Receiving Curative and Palliative Treatment.
Hopelessness is a clinically important construct in patients with advanced illness. ⋯ Our study demonstrates psychometric limitations of the BHS in patients receiving both curative and palliative treatment, suggesting reduced utility in cancer populations. Given the clinical importance of the construct, a cancer-specific approach to capture the unique meaning of hopelessness in patients with severe medical illness is recommended.