Journal of pain and symptom management
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J Pain Symptom Manage · Nov 2019
Priority Symptoms, Causes, and Self-Management Strategies Reported by AYAs with Cancer.
Cancer and symptom experiences of adolescents and young adults (AYAs) with cancer can be highly variable, creating challenges for clinicians and researchers who seek to optimize AYAs' health outcomes. Understanding the heuristics AYAs use to designate priority symptoms can provide insight into the meaning they assign to their symptoms and self-management behaviors. ⋯ Supporting AYAs to identify their priority symptoms may facilitate a more personalized approach to care. Seeking the patient's perspective regarding priority symptoms could enhance patient-clinician collaboration in symptom management.
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J Pain Symptom Manage · Nov 2019
Predictors of Advance Care Planning Documentation in Patients with Underlying Chronic Illness who Died from Traumatic Injury.
Advance care planning (ACP) is difficult in the setting of a life-threatening trauma but may be equally important in this context, especially with increasing numbers of trauma victims being elderly or having multimorbidity. ⋯ Our findings suggest that patient characteristics play an important role in the completion of ACP among patients with chronic life-limiting illness and who died from sudden severe injury. Interventions to improve ACP completion by patients with serious chronic conditions have the potential for increasing goal-concordant care in the event of traumatic injury.
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J Pain Symptom Manage · Nov 2019
Translation and validation of the 10-item FAMCARE scale to assess satisfaction of family caregivers with care given to cancer patients.
Family satisfaction with care is an important quality indicator in palliative care. ⋯ FAMCARE showed good reliability and validity.
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J Pain Symptom Manage · Nov 2019
Cancer related pain: a longitudinal study of time to stable pain control and its clinico-demographic predictors.
Multidimensional assessment is pivotal in managing cancer-related pain. ⋯ SPC is achievable for most patients with cancer pain. Recognition of strong predictors of time to SPC, such as substance abuse, a neuropathic pain component, soft tissue pain, and current use of adjuvant analgesia, may help to triage care services based on therapeutic need and guide analgesic interventions.
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J Pain Symptom Manage · Nov 2019
Stakeholders' Perceptions and Information Needs Regarding Research Medical Donation.
Research Medical Donation (RMD), which entails collecting human tissue within hours after death, benefits cancer research but data are limited regarding barriers institutions face accruing patients to RMD programs. ⋯ Patients, families, and cancer clinicians have generally low knowledge of RMD but, upon learning about it, deem it valuable for scientific advancement (particularly for rare and virulent cancers), necessary to be carried out with individualized sensitivity to end-of-life issues, and through training programs with involved clinical staff.