Journal of pain and symptom management
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J Pain Symptom Manage · Nov 2019
Cancer related pain: a longitudinal study of time to stable pain control and its clinico-demographic predictors.
Multidimensional assessment is pivotal in managing cancer-related pain. ⋯ SPC is achievable for most patients with cancer pain. Recognition of strong predictors of time to SPC, such as substance abuse, a neuropathic pain component, soft tissue pain, and current use of adjuvant analgesia, may help to triage care services based on therapeutic need and guide analgesic interventions.
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J Pain Symptom Manage · Nov 2019
Novel Data Linkages to Characterize Palliative and End-of-Life Care: Challenges and Considerations.
Working groups have called for linkages of existing and diverse databases to improve quality measurement in palliative and end-of-life (EOL) care, but limited data are available on the challenges of using different data sources to measure such care. ⋯ We found substantial variation between EHR and claims for EOL health-care use. Reliance on EHR will miss some health-care use, while claims will not capture the complex clinical details in EHR that can help define the quality of palliative care and EOL health-care utilization.
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J Pain Symptom Manage · Nov 2019
Assessing the Reliability and Validity of a Brief Measure of Caregiver Quality of Life.
There is a need for brief measurement instruments that do not cause burden to hospice caregivers. The Caregiver Quality of Life Index (CQLI) has been used in several studies, but assessment of its psychometric properties has been minimal. The CQLI-R (revised) instrument was found to have equivalent properties but also has had minimal testing in small samples. ⋯ The CQLI-R is an easy-to-use instrument to assess caregiver quality of life. Despite adequate reliability and construct validity, further evidence is needed to support content validity.
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J Pain Symptom Manage · Nov 2019
Validation of the French Version of the Integrated Palliative care Outcome Scale (IPOS).
The Integrated Palliative care Outcome Scale (IPOS) is a widely used tool for assessing patient needs in palliative care. ⋯ IPOS-Fr has fair to good validity, especially with regard to interrater agreement and construct validity, is sensitive to positive change, and has good interpretability and acceptability for patients and staff. IPOS-Fr is not optimal in terms of internal consistency and structure when using subscale scores, except for the emotional subscale.
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J Pain Symptom Manage · Nov 2019
Challenges and Priorities for Pediatric Palliative Care Research in the United States and Similar Practice Settings: Report from a Pediatric Palliative Care Research Network Workshop.
To dramatically advance the evidence base for pediatric palliative care (PPC) interventions, practices, and programs in the U.S. and similar practice settings, the field needs to better understand the challenges and opportunities for rigorous scholarship. ⋯ These challenges and priorities identify key research areas that can guide individual investigators and research funders to advance the field.