Journal of pain and symptom management
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J Pain Symptom Manage · Nov 2019
Palliative Care Opportunities Among Adults with Congenital Heart Disease - A Systematic Review.
Little is known about advance care planning (ACP) and palliative care needs among adults with congenital heart disease (ACHD). ⋯ While few ACHD patients complete advance directives, our findings support that many ACHD patients recognize the value of initiating end-of-life and goals of care conversations early on in the course of illness. Future studies investigating communication and implementation strategies of ACP as well as the symptom experience of patients with ACHD are needed.
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