Journal of pain and symptom management
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J Pain Symptom Manage · Oct 2024
Racism in Pediatric Serious Illness and Palliative Care: A Scoping Review of Qualitative Research.
Racial disparities in health outcomes have historically impacted Black and Native American children with serious illness, yet little is known about how racism shapes the healthcare experiences of these families. To improve care experiences for this population, we must understand the myriad of ways that racism may impact their experiences with serious illness. ⋯ Our findings highlight the pressing need for further qualitative research to explore the lived experiences of racially minoritized families-especially studies focusing on the experiences of Native American families.
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J Pain Symptom Manage · Oct 2024
Retraction Of PublicationOpportunities to Improve End-of-Life Care Quality among Patients with Short Terminal Admissions.
Little is known about Veterans who die during a short terminal admission, which renders them ineligible for the Department of Veterans Affairs (VA) Bereaved Family Survey. ⋯ Veterans with short terminal admissions are less likely to receive hospice or palliative care compared to patients with long terminal admissions. Many patients with short terminal admissions, such as those with life-limiting conditions (especially cancer), receive aspects of high-quality EOL care, however, opportunities for improvement exist.
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J Pain Symptom Manage · Oct 2024
ReviewCodesign Use in Palliative Care Intervention Development: A Systematic Review.
Codesign is a methodology that includes active collaboration between stakeholders in designing solutions and has been used in the development and implementation of palliative care (PC) interventions. ⋯ Codesigned PC interventions demonstrate high variance in the modality of acquiring feedback and application of codesign. Successful codesign leading to improvement in outcomes is achieved by involving patients, caregivers, and providers in iterating intervention design.
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J Pain Symptom Manage · Oct 2024
ReviewBridge the Gap: Addressing Rural End-of-Life Care Disparities and Access to Hospice Services.
Rural hospices face many obstacles in delivering palliative and end-of-life care in the United States. We aimed to identify these barriers and their potential solutions. Following a systematic approach, a comprehensive literature search using relevant keywords was conducted on online databases. ⋯ Another solution to consider is simulation-based training to enhance the education of healthcare providers. In conclusion, there is a critical gap in end-of-life care access in rural communities. A multifaceted approach including policy changes, financial support, and technological innovations is essential to improve hospice care access in rural populations.