Journal of pain and symptom management
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J Pain Symptom Manage · Nov 2024
Review Case ReportsMedical management of refractory haematuria in palliative patients.
The management of haematuria, in patients with a palliative diagnosis, refractory to standard measures presents a significant challenge for multidisciplinary teams. Our experiences with two cases led us to review the literature and highlighted the limited evidence base. ⋯ We aim to help support clinicians manage other palliative patients with this challenging symptom in future. Relevant references for this review were identified through searches of PubMed using the terms "haematuria," "hematuria," "palliative," "antifibrinolytic," "tranexamic acid," "etamsylate" "glucocorticoid," "oestrogen," "estrogen," "estradiol," "somatostatin," "thalidomide," hyperbaric oxygen" and "intravesical hyaluronic acid." Other references were suggested by the authors.
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J Pain Symptom Manage · Nov 2024
Parent-Clinician Communication and Prolonged Grief in Parents Whose Child Died from Cancer.
Parent-clinician communication is essential for high-quality end-of-life (EOL) care in children with cancer. However, it is unknown how parent-clinician communication affects parents' experience in the first two years after their child's death. ⋯ Early bereaved parents report severe prolonged grief symptoms. Interventions focused on providing adequate prognostic information and improving preparation for EOL may mitigate parental prolonged grief symptoms in the first two years of their bereavement.
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J Pain Symptom Manage · Nov 2024
Serious health-related suffering impairs treatments and survival in older patients with cancer.
More than half of new cancer cases occurred in older adults. Older patients with cancer are particularly at risk of physical, psycho-existential or socio-familial suffering as defined by the concept of Serious Health-related Suffering (SHS). ⋯ Physical suffering has direct pejorative effect on survival. All dimensions indirectly decrease survival due to poorer cancer treatability. Our findings support concomitant management of physical and psycho-existential suffering.
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J Pain Symptom Manage · Nov 2024
Randomized Controlled TrialTransitional Palliative Care for Family Caregivers: Outcomes from a Randomized Controlled Trial.
Patients receiving inpatient palliative care often face physical and psychological uncertainties during transitions out of the hospital. Family caregivers often take on responsibilities to ensure patient safety, quality of care, and extend palliative care principles, but often without support or training, potentially compromising their health and well-being. ⋯ Addressing rural caregivers' needs during transitions in care can enhance caregiver outcomes and improve patient quality of life.
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J Pain Symptom Manage · Nov 2024
ReviewEnhancing End-of-Life Care with Home-Based Palliative Interventions: A Systematic Review.
Home-Based Palliative Care (HPC) interventions have emerged as a promising approach to deliver patient-centered care in familiar surroundings, aligning with patients' preferences and improving quality of life (QOL). ⋯ HPC interventions demonstrate significant benefits in addressing the complex needs of patients with advanced illnesses. These findings underscore the importance of integrating HPC into healthcare systems to optimize outcomes and promote quality end-of-life care. Future research should focus on expanding access to HPC services, enhancing interdisciplinary collaboration, and incorporating patient preferences to further improve care delivery in this vulnerable population.