Journal of pain and symptom management
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J Pain Symptom Manage · Sep 2024
Observational StudyRacial and Ethnic Disparities in Serious Illness Conversation Quality during the COVID-19 Pandemic.
The COVID-19 pandemic disproportionately impacted non-Hispanic Black and Hispanic patients. However, little is known about the quality of serious illness communication in these communities during this time. ⋯ During the COVID-19 pandemic, serious illness conversation documentation among non-Hispanic Black and Hispanic patients was less comprehensive compared to non-Hispanic White patients.
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J Pain Symptom Manage · Sep 2024
"Life…Gets Turned Upside-Down…" Opportunities to Improve Palliative Care for High-Grade Glioma.
Early palliative care referral is recommended broadly in oncology. Yet, few patients with high-grade gliomas (HGG) - highly aggressive brain tumors - receive specialty palliative care consultation. ⋯ Patients with HGG have unique palliative care needs that affect palliative care delivery across care domains. Bidirectional education, enhanced collaboration, and consensus guidelines may help overcome barriers to specialty palliative care referral.
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J Pain Symptom Manage · Sep 2024
Learning to Trust Yourself: Decision-Making Skills among Parents of Children with Medical Complexity.
Children with medical complexity have substantial medical needs and their caregivers must make many challenging decisions about their care. Caregivers often become more involved in decisions over time, but it is unclear what skills they develop that facilitate this engagement. ⋯ Parents of children with medical complexity change how they approach decision making over time as they acquire relevant skills. These findings can inform the development of interventions to support skill-building among new caregivers.