Palliative medicine
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Palliative medicine · Feb 2022
Multicenter Study'It was like an airbag, it cushioned the blow': A multi-site qualitative study of bereaved parents' experiences of using cooling facilities.
Evidence on the benefits to parents of spending time with their child in the hours after their death means this is now routine practice. UK children's hospices offer parents the opportunity to extend this period by using cooling facilities (i.e. cooled 'bedrooms'; cooling blankets/mattresses) to slow deterioration. ⋯ As well as easing the very early days of loss, use of cooling facilities may influence longer-term bereavement outcomes.
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Palliative medicine · Feb 2022
Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review.
Most people with dementia transition into nursing homes as their disease progresses. Their family caregivers often continue to be involved in their relative's care and experience high level of strain at the end of life. ⋯ The findings provide useful information on which interventions may benefit family caregivers of people with advanced dementia at the end of life and where, when, and how they should be provided.
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Palliative medicine · Feb 2022
ReviewThe experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review.
Advanced cancer patients often present with numerous eating problems, posing a significant challenge for family caregivers during the provision of nutritional care. ⋯ Research on the studied topic was descriptive and predominantly qualitative in nature. Quantitative research examining the impact of caregiving experiences in relation to food and eating in the context of advanced cancer patients is the first important step moving this research area forward.
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Palliative medicine · Feb 2022
Palliative care needs and models of care for people who use drugs and/or alcohol: A mixed methods systematic review.
Providing palliative care for individuals who use alcohol and/or drugs poses a multi-faceted challenge. In addition to clinical and social needs, individuals may endure mental health problems, co-morbidities and homelessness, thus requiring a multi-disciplinary, flexible approach to care. ⋯ Despite end-of-life needs of this population being different to others, challenges include creating inclusive policies, sensitising staff to distinctive individual needs and training exchanges for staff working in both drug and alcohol services and palliative care.
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Palliative medicine · Feb 2022
Which factors influence the quality of end-of-life care in interstitial lung disease? A systematic review with narrative synthesis.
People dying from interstitial lung disease experience considerable symptoms and commonly die in an acute healthcare environment. However, there is limited understanding about the quality of their end-of-life care. ⋯ There is inadequate knowledge regarding the most appropriate location for end-of-life care for people with interstitial lung disease. Early palliative care involvement can improve accordance with end-of-life care wishes. Future research should consider symptom management at the end-of-life and association with location of death.