Scandinavian journal of caring sciences
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Individuals in residential aged care facilities experience urinary incontinence more than any other single population. Despite these factors, the impact of the condition on their quality of life, their perspectives of living with the condition, and their preferences for care have received little research attention. ⋯ Residents' perspectives on incontinence and preferences for continence care relate to low expectations for improvement. Such misconceptions should be addressed and residents and their family members should be given a range of options from which to choose. As urinary incontinence impacts on residents' quality of life, it is also important that continence care is delivered in a participative and sensitive way.
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Injured workers' perceived injustice can contribute to retaliatory, aggressive actions. Research also shows a relationship between persistent pain, anger and aggressive, maladaptive coping. ⋯ Narratives indicated perceived procedural injustice attributed to a flawed and uncaring compensation system. Inaccurate beliefs about WCB and poor quality of the public website may have contributed to suffering, miscommunication and perceptions of unjust, systemic mistreatment. Findings support a relationship between perceived injustice and aggressive retaliatory action.
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This article describes a single-case design study and uses an occupational science focus to explore the effects of 'Aquability' as perceived by participants with neuropalliative conditions. Data collection tools include the Individual Child Engagement Record and the adapted Leisure Satisfaction Scale--short form by 14 participants (who had Barthel scores averaging 7/100). ⋯ The participants reported being in control, learning about themselves or others and feeling healthier after a session. They reported experiencing a sense of achievement and novelty, which was interesting and enjoyable. 'Aquability' appears to be a satisfying use of free time for participants with neuropalliative conditions.
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Older persons and persons with diseases other than cancer are often discriminated against when applying for palliative care despite growing numbers of both older persons and individuals with chronic diseases. An intention for palliative care in Sweden is that all persons in the final stage of life, irrespective of age, domicile, diagnosis, and care place shall have access to palliative care on equal terms. One way to support these persons in final stage of life and their relatives is to offer sitting service. ⋯ These results can be related to an awareness in the municipality that led to adopting the concept of palliative care as not only for those with a cancer diagnosis.
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The purpose of this study was to evaluate the patient-centredness of community palliative care from the perspective of family members who were responsible for the care of a terminally ill family member. ⋯ Patient-centred care represents a service attribute that should be recognized as an important outcome to assess the quality of service delivery. This study demonstrates how this attribute can be evaluated in the provision of care.