Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
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The Rhinitis Symptom Utility Index (RSUI), originally developed in the United States, consists of a patient-preference weighting scheme and a 10-item questionnaire measuring the severity and frequency of rhinitis related symptoms over a 14-day period. This study aimed to determine whether the Chinese RSUI could adopt the US-based multi-attribute utility function (MAUF) in scoring rhinitis symptoms. ⋯ The Chinese RSUI has good measurement properties that reflect patient preferences from the Chinese. Results suggest that there are differences in preference rating between US and Chinese subjects and that use of the US-based preference function for the RSUI would bias the measurement of rhinitis symptom outcomes in Chinese subjects.
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Randomized Controlled Trial
Utility-based Quality of Life measures in Alzheimer's disease.
To explore whether Alzheimer's disease patients could rate their quality of life (QOL) using utility-based health indexes, and to provide new knowledge about the measurement properties of these instruments for patient and caregiver proxy ratings. ⋯ For patient and proxy ratings, the EQ-5D had the best combination of measurement properties, although it had a substantial ceiling effect for patient ratings. Proxy QOL ratings did not accurately reflect patients' ratings.
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The Hospital Anxiety and Depression Scale (HADS) is a widely used screening instrument. The purpose of this study was to evaluate reliability and validity of the Hungarian translation. ⋯ Based on a detailed analysis of results we found the translated version of the HADS a reliable and valid self-assessment screening tool in medical practice.
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We undertook to translate and cross-culturally adapt the Functional Assessment of Cancer Therapy-Bone Marrow Transplantation (FACT-BMT) scale Version 4, an assessment tool for BMT patients' quality of life (QoL). The translation procedure followed the standard Functional Assessment of Chronic Illness Therapy (FACIT) translation methodology. At baseline, prior to BMT, 70 allogeneic BMT patients were administered the FACT-BMT scale version 4, as well as the Eastern Cooperative Oncology Group Performance Status Rating (ECOG-PSR), Functional Living Index-Cancer (FLIC), and the Shortened Forms of the Profile of Mood States (BPOMS). ⋯ Our results indicated that the FACT-BMT scale Version 4 gave convergent and divergent validity, and had a high internal consistency with its Cronbach's alpha coefficients ranging from 0.64 (EWB at pre-BMT) to 0.94 (the FACT-BMT total). These data support that Korean FACT-BMT is a reliable and valid assessment for measuring the QoL of BMT patients. In the future study, we have to increase the number of cases with larger sample of allogeneic bone marrow transplantation patients, and the duration of long term follow-up should be at least more than 1 year.
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Comparative Study
Do the SF-36 and WHOQOL-BREF measure the same constructs? Evidence from the Taiwan population*.
The SF-36 and WHOQOL-BREF are available for international use, but it is not clear if they measure the same constructs. We compared the psychometric properties and factor structures of these two instruments. ⋯ In this Taiwan population sample, the SF-36 and WHOQOL-BREF appear to measure different constructs: the SF-36 measures health-related QOL, while the WHOQOL-BREF measures global QOL. Clinicians and researchers should carefully define their research questions related to patient-reported outcomes before selecting which instrument to use.