Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
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The Rhinitis Symptom Utility Index (RSUI), originally developed in the United States, consists of a patient-preference weighting scheme and a 10-item questionnaire measuring the severity and frequency of rhinitis related symptoms over a 14-day period. This study aimed to determine whether the Chinese RSUI could adopt the US-based multi-attribute utility function (MAUF) in scoring rhinitis symptoms. ⋯ The Chinese RSUI has good measurement properties that reflect patient preferences from the Chinese. Results suggest that there are differences in preference rating between US and Chinese subjects and that use of the US-based preference function for the RSUI would bias the measurement of rhinitis symptom outcomes in Chinese subjects.
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Randomized Controlled Trial
Utility-based Quality of Life measures in Alzheimer's disease.
To explore whether Alzheimer's disease patients could rate their quality of life (QOL) using utility-based health indexes, and to provide new knowledge about the measurement properties of these instruments for patient and caregiver proxy ratings. ⋯ For patient and proxy ratings, the EQ-5D had the best combination of measurement properties, although it had a substantial ceiling effect for patient ratings. Proxy QOL ratings did not accurately reflect patients' ratings.
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The Hospital Anxiety and Depression Scale (HADS) is a widely used screening instrument. The purpose of this study was to evaluate reliability and validity of the Hungarian translation. ⋯ Based on a detailed analysis of results we found the translated version of the HADS a reliable and valid self-assessment screening tool in medical practice.
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We undertook to translate and cross-culturally adapt the Functional Assessment of Cancer Therapy-Bone Marrow Transplantation (FACT-BMT) scale Version 4, an assessment tool for BMT patients' quality of life (QoL). The translation procedure followed the standard Functional Assessment of Chronic Illness Therapy (FACIT) translation methodology. At baseline, prior to BMT, 70 allogeneic BMT patients were administered the FACT-BMT scale version 4, as well as the Eastern Cooperative Oncology Group Performance Status Rating (ECOG-PSR), Functional Living Index-Cancer (FLIC), and the Shortened Forms of the Profile of Mood States (BPOMS). ⋯ Our results indicated that the FACT-BMT scale Version 4 gave convergent and divergent validity, and had a high internal consistency with its Cronbach's alpha coefficients ranging from 0.64 (EWB at pre-BMT) to 0.94 (the FACT-BMT total). These data support that Korean FACT-BMT is a reliable and valid assessment for measuring the QoL of BMT patients. In the future study, we have to increase the number of cases with larger sample of allogeneic bone marrow transplantation patients, and the duration of long term follow-up should be at least more than 1 year.
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To determine how health related quality of life (HRQL) is perceived by patients with rheumatoid arthritis (RA) and chronic low back pain (CLBP) using a textual analysis approach. ⋯ A series of characteristic answers on HRQL may be identified in patients with RA and CLBP, showing that they have different perceptions about what HRQL is according to their pathology. The use of open questions in a group of homogenous patients with specific pathologies could result in more disease-specific responses. Textual statistical analysis of open questions may provide more information than standard methods, and may be considered as valid for the analysis of subjective issues such as quality of life.