BMJ supportive & palliative care
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BMJ Support Palliat Care · Jun 2017
Palliative care patients' perceptions of the work involved in understanding and managing the network of care provision surrounding them.
To explore the work carried out for cancer palliative care patients in understanding and dealing with the often large network of care provision surrounding them. ⋯ The number and variety of people contributing to the care of a cancer palliative care patient can be difficult for patients and family to comprehend. Work is required by patients or family on their behalf to achieve the level of understanding required to become accomplished at navigating the system and project managing their care organisation, and is probably influenced by role expectations and previous experience. Much of this additional, often hidden, workload for patients and family could probably be reduced with clear, timely information provision by health professionals.
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BMJ Support Palliat Care · Jun 2017
Use of podcast technology to facilitate education, communication and dissemination in palliative care: the development of the AmiPal podcast.
Podcasts have the potential to facilitate communication about palliative care with researchers, policymakers and the public. Some podcasts about palliative care are available; however, this is not reflected in the academic literature. Further study is needed to evaluate the utility of podcasts to facilitate knowledge-transfer about subjects related to palliative care. The aims of this paper are to (1) describe the development of a palliative care podcast according to international recommendations for podcast quality and (2) conduct an analysis of podcast listenership over a 14-month period. ⋯ A palliative care podcast is a method to facilitate palliative care discussion with global audience. Podcasts offer the potential to develop educational content and promote research dissemination. Future work should focus on content development, quality metrics and impact analysis, as this form of digital communication is likely to increase and engage wider society.
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BMJ Support Palliat Care · Jun 2017
Why don't end-of-life conversations go viral? A review of videos on YouTube.
To identify videos on YouTube concerning advance care planning (ACP) and synthesise existing video content and style elements. ⋯ None of the ACP videos on YouTube went viral and a relatively small number of them contained elements endorsed by stakeholders. In emphasising the completion of legal medical documents, videos may have failed to support more meaningful ACP. Further research is needed to understand the features of videos that will engage patients and the wider community with ACP and palliative and end-of-life care conversations.
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BMJ Support Palliat Care · Mar 2017
Palliative care development in the Asia-Pacific region: an international survey from the Asia Pacific Hospice Palliative Care Network (APHN).
Although palliative care is an important public healthcare issue worldwide, the current situation in the Asia-Pacific region has not been systematically evaluated. ⋯ The development of palliative care is in different stages across the surveyed countries/regions in the Asia-Pacific region. Data from this survey can be used as baseline data for monitoring the development of palliative care in this region.