• Gwen Darien, Christine Wilson, Alan Balch, and Rebekah Angove Patient Advocate Foundation/National Patient Advocate Foundation, USA..
• Patient Advocate Foundation/National Patient Advocate Foundation, USA.
• J Natl Med Assoc. 2020 Apr 1; 112 (2): 225-228.

IntroductionTransparency about the costs that patients incur is an increasingly important factor in making decisions throughout the course of diagnosis and treatment. Both patients and providers regard honest, informed discussions about these costs as critical to providing person-centered care, but often encounter a range of barriers to initiating and maintaining these conversations.MethodsThe Patient Advocate Foundation/National Patient Advocate Foundation with partial funding from the Robert Wood Johnson Foundation has conducted both quantitative and qualitative research with patients and providers designed to identify key issues related to cost of care discussions.ResultsKey issues identified include components of financial toxicity for patients, both related to direct costs and to quality of life, as well as questions as to who should initiate these conversations, when they should take place, and what kind of information and training are needed to make these conversations meaningful.ConclusionsThis article reports the results of this work with recommendations for providers about how to incorporate cost of care discussions into the normal clinical work flow and patient life flow.Copyright © 2020 National Medical Association. Published by Elsevier Inc. All rights reserved.

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