• J Pain Symptom Manage · Nov 2020

    Multicenter Study

    Keepsakes at the End of Life.

    • Thanh H Neville, France Clarke, Alyson Takaoka, Marina Sadik, Meredith Vanstone, Peter Phung, Kristen Hjelmhaug, Jessica Hainje, Orla M Smith, Allana LeBlanc, Neala Hoad, Benjamin Tam, Brenda Reeve, and Deborah J Cook.
    • David Geffen School of Medicine, UCLA, Los Angeles, California, USA; Division of Pulmonary and Critical Care Medicine, Department of Medicine, University of California, Los Angeles, California, USA. Electronic address: tneville@mednet.ucla.edu.
    • J Pain Symptom Manage. 2020 Nov 1; 60 (5): 941-947.

    ContextKeepsakes are a relatively unexplored form of bereavement support that is frequently provided as part of the 3 Wishes Project (3WP). The 3WP is a palliative care intervention in which individualized wishes are implemented in the adult intensive care unit for dying patients and their families.ObjectivesWe aimed to characterize and enumerate the keepsakes that were created as part of the 3WP and to understand their value from the perspective of bereaved family members.MethodsWe performed a secondary analysis of family interviews during a multicenter study on the 3WP and characterized all wishes that involved keepsakes. Sixty interviews with family members regarding the 3WP were reanalyzed using qualitative analysis to identify substantive themes related to keepsakes.ResultsOf 730 patients, 345 (47%) received keepsakes as part of their participation in 3WP. Most keepsakes were either tangible items that served as reminders of the patient's presence (thumbprints and locks of hair) or technology-assisted items (photographs and word clouds). The median cost per keepsake wish was $8.50 (interquartile range $2.00-$25.00). Qualitative analysis revealed two major themes: keepsakes are tangible items that are highly valued by family members; and the creation of the keepsake with clinical staff is valued and viewed as a gesture of compassion.ConclusionKeepsakes are common wishes that clinicians in the intensive care unit are able to provide and sometimes cocreate with families when patients are dying. Both the offering to create the keepsake and receipt of the final product are perceived by family members as helpful.Copyright © 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

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