-
J Pediatr Health Care · Nov 2003
Case ReportsChronic sorrow: one mother's experience with two children with lissencephaly.
- Jean M Scornaienchi.
- APRN-BC, Bancroft NeuroSciences Institute, 201 King's Highway South, Cherry Hill, NJ 08034, USA. jscornaienchi@bnh.org
- J Pediatr Health Care. 2003 Nov 1; 17 (6): 290-4.
AbstractThe concept of chronic sorrow has been used to describe the reaction of parents to the ongoing losses associated with caring for a child with chronic illness or disability. A middle-range theory of chronic sorrow provides a framework for further understanding of this phenomenon. This theory is applied to a case of a family burdened with the unrelenting stress of caring for 2 children with lissencephaly. With an understanding of chronic sorrow, nurses can plan interventions that recognize it as a normal reaction, promote healthy adaptation, and provide empathetic support.
Notes
Knowledge, pearl, summary or comment to share?You can also include formatting, links, images and footnotes in your notes
- Simple formatting can be added to notes, such as
*italics*,_underline_or**bold**. - Superscript can be denoted by
<sup>text</sup>and subscript<sub>text</sub>. - Numbered or bulleted lists can be created using either numbered lines
1. 2. 3., hyphens-or asterisks*. - Links can be included with:
[my link to pubmed](http://pubmed.com) - Images can be included with:
 - For footnotes use
[^1](This is a footnote.)inline. - Or use an inline reference
[^1]to refer to a longer footnote elseweher in the document[^1]: This is a long footnote..