• Yakubu Salifu, Kathryn Almack, and Glenys Caswell.
• International Observatory on End of Life Care, Division of Health Research, Faculty of Health and Medicine, Lancaster University, Lancaster, Lancashire, UK.
• Palliat Med. 2021 Jan 1; 35 (1): 9710897-108.

BackgroundFamily caregiving is common globally, but when a family member needs palliative and end-of-life care, this requires knowledge and expertise in dealing with symptoms, medication, and treatment side effects. Caring for a family member with advanced prostate cancer in the home presents practical and emotional challenges, especially in resource-poor contexts, where there are increasing palliative cases without adequate palliative care institutions.AimThe study explored palliative and end-of-life care experiences of family caregivers and patients living at home in a resource-poor context in Ghana.DesignThis is a qualitative study using thematic analysis of face-to-face interviews at two-time points.ParticipantsMen living with advanced prostate cancer (n = 23), family caregivers (n = 23), healthcare professionals (n = 12).FindingsMen with advanced prostate cancer face complex issues, including lack of access to professional care and a lack of resources for homecare. Family caregivers do not have easy access to professional support; they often have limited knowledge of disease progression. Patients have inadequate access to medication and other practical resources for homecare. Caregivers may be overburdened and perform the role of the patient's 'doctor' at home-assessing patient's symptoms, administering drugs, and providing hands-on care.ConclusionHome-based care is promoted as an ideal and cost-effective model of care, particularly in Westernised palliative care models. However, in resource-poor contexts, there are significant challenges associated with the implementation of this model. This study revealed the scale of challenges family caregivers, who lack basic training on aspects of caring, face in providing home care unsupported by healthcare professionals.

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