• Anika Smeijers, Beppie van den Bogaerde, Martina Ens-Dokkum, and Anne Marie Oudesluys-Murphy.
• Department of Pediatrics, Academic Medical Centre, Amsterdam, The Netherlands.
• J Eval Clin Pract. 2020 Dec 1; 26 (6): 1588-1591.

Rationale, Aims, And ObjectiveA group of organizations and individuals in the Netherlands collaborated to attempt to improve access to health care and health education for deaf and hard of hearing (DHH) patients in the country. The outcome was the start of a specialized outpatient clinic named PoliDOSH. An independent research group was set up to evaluate the effect of this specialized clinic. Even though the initiative did not succeed and was closed after 2 years, an extensive analysis of the start-up and functioning of the whole process was made.MethodsStructured and nonstructured questionnaires and structured interviews.ResultsOnly a small group of DHH patients indicated that they felt a need for consultations at the PoliDOSH. It became clear that to ensure successful functioning of a specialized facility the team members should include a representative group of DHH members. All key functions should be filled by top experts in the relevant fields as well as an expert in communication and needs of the target group.ConclusionsThere is a great need for facilities to collect and disseminate information to and about DHH patients. The information should be aimed at providing psycho-education for the DHH persons themselves and health care professionals, concerning the specific needs and problems of this patient group. If a similar facility is set up in the future, thorough market research prior to start up is needed to enable the facility to connect with the needs of patients. The start-up period should allow sufficient time for the project to become known and for patients to become familiar with it and trust it.© 2020 The Authors. Journal of Evaluation in Clinical Practice published by John Wiley & Sons Ltd.

12 keywords...

hide…