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- Josephine Cleary and Owen Doody.
- Brothers of Charity, Limerick, Ireland.
- J Clin Nurs. 2017 Mar 1; 26 (5-6): 620-631.
Aims And ObjectivesTo explore nurses' experiences of caring for older people with intellectual disability and dementia.BackgroundAgeing and dementia prevalence is increasing along with the life expectancy of people with intellectual disability. As a population group, people with intellectual disability have a high prevalence of dementia, which is higher within the subpopulation of Down syndrome. People with intellectual disability live in residential care, community or residential settings, and nurses are required to adapt their practices to meet the changed needs of the individual.DesignA qualitative Husserlian descriptive phenomenological methodology facilitated the researcher to become absorbed in the quintessence of meaning and explore nurses' experience of working with older people with intellectual disability and dementia.MethodsEthical approval was obtained, and data were collected utilising semistructured interviews (n = 11). Interviews were transcribed and analysed using Colaizzi's framework for data analysis.ResultsThree key themes were identified: 'knowledge of dementia', 'person-centred care' and 'transitioning within the service'. The study highlights the need for proactive planning, life story books of the patient, and funding to support client and staff.ConclusionsOverall, the study highlights the importance of knowing the person, supporting the individual and recognising presenting behaviours as outside the control of the individual.Relevance To Clinical PracticeThis article presents the experiences of nurses caring for the older person with intellectual disability and dementia. Transitions are often very difficult for both the person and their peers, and they experience benefit from the efforts of a multidisciplinary team facilitating a person-centred approach.© 2016 John Wiley & Sons Ltd.
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