• J Head Trauma Rehabil · May 2018

    Follow-Up Care Adherence After Hospital Discharge in Children With Traumatic Brain Injury.

    • Alexandra J Spaw, Jennifer P Lundine, Sarah A Johnson, Jin Peng, Krista K Wheeler, Junxin Shi, Ginger Yang, Kathy J Haley, Jonathan I Groner, and Henry Xiang.
    • The Ohio State University College of Medicine (Ms Spaw and Drs Yang, Groner, and Xiang), Division of Clinical Therapies, Nationwide Children's Hospital (Dr Lundine), Center for Pediatric Trauma Research, The Research Institute at Nationwide Children's Hospital (Mss Johnson, Wheeler, and Haley, and Drs Peng, Shi, Yang, Groner, and Xiang), Center for Injury Research and Policy, The Research Institute at Nationwide Children's Hospital (Ms Johnson and Wheeler and Drs Peng, Shi, Yang, and Xiang), College of Public Health, The Ohio State University (Dr Peng), and Trauma Program, Nationwide Children's Hospital (Ms Haley and Dr Groner), Columbus, Ohio.
    • J Head Trauma Rehabil. 2018 May 1; 33 (3): E1-E10.

    ObjectiveTo investigate factors associated with follow-up care adherence in children hospitalized because of traumatic brain injury (TBI).DesignAn urban level 1 children's hospital trauma registry was queried to identify patients (2-18 years) hospitalized with a TBI in 2013 to 2014. Chart reviewers assessed discharge summaries and follow-up instructions in 4 departments.Main MeasuresThree levels of adherence-nonadherence, partial adherence, and full adherence-and their associations with care delivery, patient, and injury factors.ResultsIn our population, 80% were instructed to follow up within the hospital network. These children were older and had more severe TBIs than those without follow-up instructions and those referred to outside providers. Of the 352 eligible patients, 19.9% were nonadherent, 27.3% were partially adherent, and 52.8% were fully adherent. Those recommended to follow up with more than 1 department had higher odds of partial adherence over nonadherence (adjusted odds ratio [AOR] = 5.8, 95% CI: 1.9-17.9); however, these patients were less likely to be fully adherent (AOR = 0.1; 95% CI: 0.1-0.3). Privately insured patients had a higher AOR of full adherence.ConclusionsNearly 20% of children hospitalized for TBI never returned for outpatient follow-up and 27% missed appointments. Care providers need to educate families, coordinate service provision, and promote long-term monitoring.

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