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- Jennifer N Hill, Bridget M Smith, Frances M Weaver, Kim M Nazi, Florian P Thomas, Barry Goldstein, and Timothy P Hogan.
- a Center of Innovation for Complex Chronic Health Care , Edward Hines Jr. VA Hospital, Veterans Health Administration , Hines , Illinois , USA.
- J Spinal Cord Med. 2018 May 1; 41 (3): 298-308.
Context/ObjectiveAlthough personal health record (PHR) portals are designed for patients, healthcare providers are a key influence in how patients use their features and realize benefits from them. A few studies have examined provider attitudes toward PHR portals, but none have focused on those who care for individuals with spinal cord injuries and disorders (SCI/D). We characterize SCI/D provider perspectives of PHR portals, including perceived advantages and disadvantages of PHR portal use in SCI/D care.DesignCross-sectional; semi-structured interviews.SettingSpinal Cord Injury (SCI) Centers in the Veterans Health Administration.ParticipantsTwenty-six SCI/D healthcare providers.InterventionsNone.Outcome MeasuresPerceived advantages and disadvantages of PHR portals.ResultsThe complex situations of individuals with SCI/D shaped provider perspectives of PHR portals and their potential role in practice. Perceived advantages of PHR portal use in SCI/D care included the ability to coordinate information and care, monitor and respond to outpatient requests, support patient self-management activities, and provide reliable health information to patients. Perceived disadvantages of PHR portal use in SCI/D care included concerns about the quality of patient-generated health data, other potential liabilities for providers and workload burden, and the ability of individuals with SCI/D to understand clinical information accessed through a portal.ConclusionOur study highlights advantages and disadvantages that should be considered when promoting engagement of SCI/D healthcare providers in use of PHR portals, and portal features that may have the most utility in SCI/D care.
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