• J Palliat Med · Sep 2021

    Definitions of Palliative Care Terms: A Consensus-Oriented Decision-Making Process.

    • Jingjie Xiao, Carleen Brenneis, Nadine Ibrahim, Alyssa Bryan, and Konrad Fassbender.
    • Covenant Health Palliative Institute, Grey Nuns Community Hospital, St. Marguerite Health Services Center, Edmonton, Alberta, Canada.
    • J Palliat Med. 2021 Sep 1; 24 (9): 1342-1350.

    AbstractBackground: Lack of consistency in palliative care language can serve as barriers when designing, delivering, and accessing high-quality palliative care services. Objective: To develop a consensus-driven and evidence-based palliative care glossary for the Health Standards Organization Palliative Care Services National Standard of Canada (CAN/HSO 13001:2020). Design: Content analysis of the Palliative Care Services standard was used to refine a list of terms. Environmental scan and rapid review were used for identification of concepts and definitions. Two meetings of consultation based on the modified Delphi approach took place among a working committee consisting of 12 health care providers, administrators, academics, and patient/family representatives. Results: Palliative approach to care, quality of life, pain and symptom management, caregivers, palliative care, life-limiting illness, and serious illness were defined by modification/adoption of existing definitions. Conclusion: A glossary of key palliative care terms was developed and included in the HSO Palliative Care Services standard, which will facilitate communication using consistent language across care settings.

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