• Kuo-Cheng Hsu, Hui Fang Lu, Ya-Chi Chen, and Li Fen Chen.
• School of Nursing, College of Medicine, Chang Gung University, Tao-Yuan, Taiwan; Linkou Chang Gung Memorial Hospital Nursing Department Burn Center, Tao-Yuan, Taiwan.
• Burns. 2021 Dec 1; 47 (8): 1878-1889.

PurposeThis study examines the differences in parent-perceived and patient-reported quality of life (QoL) among young adult burn patients three years after injury and the factors affecting these differences.MethodThe sample comprised 35 burn patients from the Formosa Fun Coast Water Park dust explosion and their parents. The study was conducted from June 2016 to August 2018. We used self-report questionnaires to collect socio-demographic data, the adapted Chinese version of the Burn Specific Health Scale-Brief, and the Impact of Events Scale for Burn.ResultsThe analysis indicated that simple abilities recovered the fastest, while body image recovered the slowest. The variation trends of these factors were similar but parents' scores were lower than patients' scores. Parents' post-traumatic stress disorder (PTSD) scores were higher than that of patients, but were not statistically significant. Parents' gender and PTSD levels and patients' burn area affected differences in parent-perceived QoL among patients. PTSD levels were significantly higher among mothers.ConclusionsFor parents, PTSD is a common response to their children experiencing burn injuries. Parents' observations of warning signs enable early medical intervention. Establishing a family-centered care plan, providing psychological support for both parents and patients, and forming a continuous care system with efficient communication can support patients' return to society.Copyright © 2021 Elsevier Ltd and ISBI. All rights reserved.

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