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Palliative medicine · May 2021
A qualitative study of bereaved relatives' end of life experiences during the COVID-19 pandemic.
- Jeffrey R Hanna, Elizabeth Rapa, Louise J Dalton, Rosemary Hughes, Tamsin McGlinchey, Kate M Bennett, Warren J Donnellan, Stephen R Mason, and Catriona R Mayland.
- Department of Psychiatry, University of Oxford, Warneford Hospital, Oxford, UK.
- Palliat Med. 2021 May 1; 35 (5): 843851843-851.
BackgroundMeeting the needs of relatives when a family member is dying can help facilitate better psychological adjustment in their grief. However, end of life experiences for families are likely to have been deleteriously impacted by the COVID-19 crisis. Understanding how families' needs can be met during a global pandemic will have current/future relevance for clinical practice and policy.AimTo explore relatives' experiences and needs when a family member was dying during the COVID-19 pandemic.DesignInterpretative qualitative study using semi-structured interviews. Data were analysed thematically.Setting/ParticipantsA total of 19 relatives whose family member died during the COVID-19 pandemic in the United Kingdom.ResultsIn the absence of direct physical contact, it was important for families to have a clear understanding of their family member's condition and declining health, stay connected with them in the final weeks/days of life and have the opportunity for a final contact before they died. Health and social care professionals were instrumental to providing these aspects of care, but faced practical challenges in achieving these. Results are presented within three themes: (1) entering into the final weeks and days of life during a pandemic, (2) navigating the final weeks of life during a pandemic and (3) the importance of 'saying goodbye' in a pandemic.ConclusionsHealth and social care professionals can have an important role in mitigating the absence of relatives' visits at end of life during a pandemic. Strategies include prioritising virtual connectedness and creating alternative opportunities for relatives to 'say goodbye'.
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