• Carol Dawson-Rose, Yvette P Cuca, Allison R Webel, Solymar S Solís Báez, William L Holzemer, Marta Rivero-Méndez, Sanzero Eller Lucille L, Paula Reid, Mallory O Johnson, Jeanne Kemppainen, Darcel Reyes, Kathleen Nokes, Patrice K Nicholas, Ellah Matshediso, Keitshokile Dintle Mogobe, Motshedisi B Sabone, Esther I Ntsayagae, Sheila Shaibu, Inge B Corless, Dean Wantland, and Teri Lindgren.
• J Assoc Nurses AIDS Care. 2016 Sep 1; 27 (5): 574-84.

AbstractHealth literacy is important for access to and quality of HIV care. While most models of health literacy acknowledge the importance of the patient-provider relationship to disease management, a more nuanced understanding of this relationship is needed. Thematic analysis from 28 focus groups with HIV-experienced patients (n = 135) and providers (n = 71) identified a long-term and trusting relationship as an essential part of HIV treatment over the continuum of HIV care. We found that trust and relationship building over time were important for patients with HIV as well as for their providers. An expanded definition of health literacy that includes gaining a patient's trust and engaging in a process of health education and information sharing over time could improve HIV care. Expanding clinical perspectives to include trust and the importance of the patient-provider relationship to a shared understanding of health literacy may improve patient experiences and engagement in care.Copyright © 2016 The Authors. Published by Elsevier Inc. All rights reserved.

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