• BMJ Support Palliat Care · Nov 2019

    Review

    Patients' spirituality perspectives at the end of life: a qualitative evidence synthesis.

    • Barbara Clyne, Sinead M O'Neill, Daniel Nuzum, Michelle O'Neill, James Larkin, Máirín Ryan, and Susan M Smith.
    • Department of General Practice, Royal College of Surgeons in Ireland, Dublin, Ireland barbaraclyne@rcsi.ie.
    • BMJ Support Palliat Care. 2019 Nov 26.

    BackgroundUnderstanding patient perceptions of their spiritual needs when approaching the end of life is essential to support the delivery of patient-centred care.AimTo conduct a qualitative evidence synthesis on spirituality and spiritual care needs at the end of life in all healthcare settings from the patients' perspective.DesignStudies were included where they were primary qualitative studies exploring spirituality in patients with a life expectancy of 12 months or less in any setting. Two reviewers independently screened titles, extracted data and conducted methodological quality appraisal. A thematic synthesis was conducted. Grading of Recommendations, Assessment, Development and Evaluation (GRADE) - Confidence in the Evidence from Reviews of Qualitative research (CERQual) was used to summarise the certainty of the evidence.Data SourcesSix databases (Medline, Embase, Cochrane, CINAHL, PsycINFO, Applied Social Science Index and Abstracts) were searched from inception up to January 2019.ResultsFifty papers (42 unique datasets), incorporating data from 710 patients were included. Studies recruited from a mix of inpatient, outpatient, hospice and community settings across 12 different countries. Three overarching themes were generated: the concept of spirituality, spiritual needs and distress, and spiritual care resources. Relationships were an intrinsic component of spirituality.ConclusionMeeting patients' spiritual needs is an integral part of end-of-life care. This work emphasises that supporting relationships should be a central focus of spiritual care for patients at the end of life.Prospero Registration NumberCRD42019122062.© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.

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