• J Rheumatol · Sep 2019

    Addressing Challenges in Developing a Core Domain Set in Adherence Interventions in Rheumatology: A Report from the OMERACT-Adherence Group.

    • Ayano Kelly, Susan J Bartlett, Maarten P de Wit, Dorcas E Beaton, Therese Dawson, Vicki Evans, Michael Gill, Geraldine Hassett, Lyn March, Marieke Scholte-Voshaar, Jasvinder A Singh, Allison Tong, Peter Tugwell, Peter Wong, and Kathleen Tymms.
    • From the Canberra Rheumatology; College of Health and Medicine, Australian National University; Clear Vision Consulting; Discipline of Optometry, University of Canberra; Department of Rheumatology, Canberra Hospital, Canberra; Centre for Kidney Research, The Children's Hospital at Westmead; Dragon Claw (Web site for patients with rheumatic disease); Department of Rheumatology, Liverpool Hospital; Ingham Institute of Applied Medical Research; Department of Rheumatology, Royal North Shore Hospital; Institute of Bone and Joint Research, Kolling Institute of Medical Research; Northern Clinical School, and the School of Public Health, The University of Sydney, Sydney; Lord Street Specialist Centre, Port Macquarie; Mayo Hospital Specialist Centre, Taree; Mid-North Coast Arthritis Clinic; University of New South Wales Rural Clinical School, Coffs Harbour, Australia; Department of Medicine, McGill University; Centre for Outcomes Research and Evaluation, McGill University Health Centers, Montreal; Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St. Michael's Hospital; Institute for Work and Health; Department of Occupational Science and Occupational Therapy and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland; Medicine Service, VA Medical Center, Birmingham; Department of Medicine, School of Medicine, and the Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Amsterdam University Medical Centre, Department of Medical Humanities, Amsterdam Public Health, Amsterdam; University of Twente, Department of Psychology, Health and Technology, Enschede, the Netherlands. Ayano.Kelly@anu.edu.au.
    • J Rheumatol. 2019 Sep 1; 46 (9): 1202-1206.

    ObjectiveThe OMERACT-Adherence meeting was convened to discuss the conceptual and methodological challenges in developing a core domain set (Adherence-CDS) for trials of interventions for medication adherence in rheumatology.MethodsForty participants from nine countries participated.ResultsFour ideas emerged: for adherence trials, the Adherence-CDS could include adherence and the condition-specific CDS; many factors affect adherence and are intervention targets, contextual factors, or outcome domains; adherence is a critical factor in drug trials; and standardized adherence measures are needed.ConclusionDespite the challenges, the meeting clarified an approach to developing an Adherence-CDS that complements existing OMERACT work and methodology.

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