• Jie Deng, Sheila H Ridner, Mary S Dietrich, Nancy Wells, and Barbara A Murphy.
• School of Nursing, Vanderbilt University.
• Oncol Nurs Forum. 2013 Sep 1; 40 (5): 501-6.

Purpose/ObjectivesTo compare available grading and staging scales that measure external lymphedema in patients with head and neck cancer (HNC) and to assess problems and gaps related to these tools.DesignCross-sectional.SettingA comprehensive cancer center in Tennessee.Sample103 participants post-HNC treatment.MethodsFour scales were used to evaluate study participant external lymphedema status, including the Common Terminology Criteria for Adverse Events (CTCAE) Lymphedema Scale (version 3.0), American Cancer Society Lymphedema Scale, Stages of Lymphedema (Földi's Scale), and the CTCAE Fibrosis Scale (version 3.0).Main Research VariablesOccurrence rate, severity of lymphedema, and components and descriptors of each scale.FindingsThe prevalence and severity of external lymphedema differed based on the tools. Each tool had an identified limitation. Current theory postulates a continuum between lymphedema and fibrosis, but only the Földi's Scale adequately reflected that concept.ConclusionsNone of the available scales clearly captured all the important characteristics of external lymphedema in patients with HNC. A need exists to develop a clearly defined and validated scale of external lymphedema in the HNC population.Implications For NursingOncology nurses should take an active role in addressing issues related to lymphedema assessment in patients post-HNC treatment; however, new assessment tools need to be developed for clinical use.Knowledge TranslationEarly identification and accurate documentation of head and neck lymphedema are critically important to prevent lymphedema progress. However, existing grading criteria failed to capture important characteristics of external head and neck lymphedema. More research efforts need to be made to address this under-recognized issue.

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