• David B Nicholas, Lonnie Zwaigenbaum, Barbara Muskat, William R Craig, Amanda S Newton, Justine Cohen-Silver, Raphael F Sharon, Andrea Greenblatt, and Christopher Kilmer.
• Faculty of Social Work, University of Calgary (Edmonton Division), Edmonton, Alberta, Canada; nicholas@ucalgary.ca.
• Pediatrics. 2016 Feb 1; 137 Suppl 2: S205-11.

Background And ObjectiveThere is increasing recognition that children with autism spectrum disorder (ASD) experience challenges in busy clinical environments such as the emergency department (ED). ASD may heighten adverse responses to sensory input or transitions, which can impose greater difficulty for a child to cope with situational demands. These problems can be amplified in the ED because of its busy and unpredictable nature, wait times, and bodily care. There is little literature documenting ED-based needs of children with ASD to inform clinical guidelines. The objective was to identify stakeholder perspectives in determining clinical priorities and recommendations to guide ED service delivery for children with ASD.MethodsAfter qualitative interviews with children, parents, and health care providers conducted in a previous phase of this study, focus groups were convened with parents of children with ASD, ED clinicians, and ED administrators (total n = 60). Qualitative data were analyzed based on an interpretive description approach.ResultsParticipants identified the ED and its delivery of care as insufficient to meet the unique needs of children with ASD. The following clinical priorities were identified: ASD-focused preparedness for ED procedures and processes, wait time management, proactive strategies for sedation and restraint, child-focused support, health care provider capacity building, post-ED follow-up resources, and transition planning to adult care. Heightened child- and family-centered care were strongly recommended.Copyright © 2016 by the American Academy of Pediatrics.

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