• Marcel Arcand, Kevin Brazil, Miharu Nakanishi, Taeko Nakashima, Michel Alix, Jean-François Desson, Rémy Morello, Louise Belzile, Marie Beaulieu, Cees M P M Hertogh, Franco Toscani, and Jenny T van der Steen.
• Int J Palliat Nurs. 2013 Feb 1; 19 (2): 67-74.

BackgroundThe families of people with late-stage dementia need to be informed about the course of the dementia and the comfort/palliative care option. A booklet was written for that purpose and can be provided to family members by physicians and nurses.MethodsThe acceptability of the booklet for nurses was tested in Canada (French and English version), France (French Canadian version) and Japan (translated and adapted version).ResultsOverall, 188 nurses completed a survey questionnaire. The booklet was accepted best in Canada and less so in France and Japan. Despite regional variation, the majority of the nurses perceived the booklet as useful for families. The French and Japanese nurses also reported a greater need for palliative care education in advanced dementia.ConclusionThe booklet may help nurses educate families about end-of-life issues in dementia palliative care, but local adaptation of the booklet content and physician engagement are necessary.

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