• Palliat Support Care · Apr 2015

    "It is the 'starting over' part that is so hard": Using an online group to support hospice bereavement.

    • Elaine Wittenberg-Lyles, Karla Washington, Debra Parker Oliver, Sara Shaunfield, L Ashley Gage, Megan Mooney, and Alexandria Lewis.
    • Division of Nursing Research and Education,City of Hope National Medical Center,Duarte, California.
    • Palliat Support Care. 2015 Apr 1; 13 (2): 351-7.

    ObjectiveAlthough hospice agencies are required to provide informal caregivers (family or friends of the patient) with formal bereavement support when their loved one passes, most bereavement interventions lack standardization and remain untested. We employed the Dual Processing Model of Bereavement as a theoretical framework for assessing the potential of a secret Facebook group for bereaved hospice caregivers.MethodA mixed-methods approach was utilized to analyze online communication (posts and comments) in the secret Facebook group, and self-reported outcome measures on depression and anxiety were compared pre- and post-intervention.ResultsSixteen caregivers participated in the secret Facebook group over a period of nine months. The majority of online talk was oriented to restoration, revealing abrupt and anticipated triggers that evoked feelings of loss. Caregivers also shared loss orientation through storytelling, sharing and giving advice, and encouraging others to manage the challenges of coping. Caregiver anxiety and depression were lower after the intervention.Significance Of ResultsThis pilot study provides insight into the use of a secret Facebook group to facilitate bereavement support to caregivers. Findings highlight the promise of Facebook for hospice bereavement support. Providers and researchers are encouraged to explore the positive outcomes associated with bereavement support.

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