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- Virginia T LeBaron, Amanda Cooke, Jonathan Resmini, Alexander Garinther, Vinca Chow, Rebecca Quiñones, Sarah Noveroske, Andrew Baccari, Patrick T Smith, John Peteet, Tracy A Balboni, and Michael J Balboni.
- 1 University of Virginia School of Nursing , Charlottesville, Virginia.
- J Palliat Med. 2015 Dec 1; 18 (12): 100010071000-7.
BackgroundClergy are often important sources of guidance for patients and family members making medical decisions at the end-of-life (EOL). Previous research revealed spiritual support by religious communities led to more aggressive care at the EOL, particularly among minority patients. Understanding this phenomenon is important to help address disparities in EOL care.ObjectiveThe study objective was to explore and describe clergy perspectives regarding "good" versus "poor" death within the participant's spiritual tradition.MethodsThis was a qualitative, descriptive study. Community clergy from various spiritual backgrounds, geographical locations within the United States, and races/ethnicities were recruited. Participants included 35 clergy who participated in one-on-one interviews (N = 14) and two focus groups (N = 21). Semistructured interviews explored clergy viewpoints on factors related to a "good death." Principles of grounded theory were used to identify a final set of themes and subthemes.ResultsA good death was characterized by wholeness and certainty and emphasized being in relationship with God. Conversely, a "poor death" was characterized by separation, doubt, and isolation. Clergy identified four primary determinants of good versus poor death: dignity, preparedness, physical suffering, and community. Participants expressed appreciation for contextual factors that affect the death experience; some described a "middle death," or one that integrates both positive and negative elements. Location of death was not viewed as a significant contributing factor.ConclusionsUnderstanding clergy perspectives regarding quality of death can provide important insights to help improve EOL care, particularly for patients highly engaged with faith communities. These findings can inform initiatives to foster productive relationships between clergy, clinicians, and congregants and reduce health disparities.
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