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Internal medicine journal · Jun 2021
Optimising participation of persons with cognitive impairment in a national dementia registry: challenges and solutions.
- Xiaoping Lin, Kasey Wallis, Susannah Ahern, Henry Brodaty, Christopher Rowe, Barbara Kain, Sally Lambourne, John McNeil, and Stephanie A Ward.
- School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
- Intern Med J. 2021 Jun 1; 51 (6): 988-992.
AbstractClinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt-out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision-making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment.© 2021 Royal Australasian College of Physicians.
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