• Joint Bone Spine · Jul 2018

    Building a transitional care checklist in rheumatology: A Delphi-like survey.

    • Christina Akre, Joan-Carles Suris, Alexandre Belot, Marie Couret, Thanh-Thao Dang, Agnès Duquesne, Béatrice Fonjallaz, Sophie Georgin-Lavialle, Jean-Paul Larbre, Johannes Mattar, Anne Meynard, Susanne Schalm, and Michaël Hofer.
    • Institute of social and preventive medicine, Lausanne university hospital, 10, route de la Corniche, 1010 Lausanne, Switzerland. Electronic address: Christina.Akre@chuv.ch.
    • Joint Bone Spine. 2018 Jul 1; 85 (4): 435-440.

    ObjectivesTo design a transitional care checklist to be used by and facilitate the work of health professionals in providing transitional care for children with a chronic rheumatologic disease and their families.MethodsA Delphi-like study among an international expert panel was carried out in four steps: (1) a working group of 6 specialists established a draft; (2) a web-survey among a panel of international experts evaluated it; (3) a 2-day consensus conference with an expert panel discussed items not reaching agreement; (4) a web-survey among the panel of international experts with the list of reformulated items.ResultsThe first draft of the checklist included 38 items in 3 phases of transition and 5 age groups. Thirty-three international experts evaluated the checklist reaching≥80% agreement for 26 items and ≤80% for 12. The consensus conference of 12 experts discussed and redefined the 12 items. Twenty-five international experts filled out the web-survey and all items reached a minimum of 80% agreement except one. The final checklist was reached.ConclusionsThis Delphi-like study defined what themes should be included and at what age they need to be addressed with patients with a chronic rheumatology disease and their families during transition. This checklist reached a strong international and interdisciplinary consensus while examining transition in a broad way. It should now be spread widely to health professionals to be used by all those who care for adolescents aged≥12 years at times of transition. It could be transposed to most chronic conditions. Recommendations for further research are given.Copyright © 2017 Société française de rhumatologie. Published by Elsevier Masson SAS. All rights reserved.

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