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- Michael T Pulley, Rebecca Brittain, Wayne Hodges, Christine Frazier, Leslie Miller, Maria Matyjasik-Liggett, Susan Maurer, Melissa Peters, Kimberly Solomon, and Alan R Berger.
- Department of Neurology, University of Florida, Jacksonville, Florida, USA.
- Muscle Nerve. 2019 Jan 1; 59 (1): 34-39.
IntroductionAmyotrophic lateral sclerosis (ALS) patients benefit from multidisciplinary care in an ALS clinic. We studied whether multidisciplinary care of ALS patients using the store and forward method of telemedicine was feasible and acceptable to patients and providers.MethodsALS patients seen in the University of Florida (UF) Jacksonville ALS clinic were eligible for our study. A trained telemedicine nurse performed and recorded a multidisciplinary assessment of the patient in their home. Clinic team members reviewed the assessments and provided recommendations, and the clinic director discussed the plan with the patient via videoconference. Patient and provider satisfaction was evaluated using surveys.ResultsEighteen patients completed a total of 27 telemedicine visits. Patient satisfaction was excellent and provider satisfaction was very good.DiscussionThe store and forward method of telemedicine is an acceptable alternative to live telemedicine for the multidisciplinary care of ALS patients. This method of care may improve access to multidisciplinary care for this patient population. Muscle Nerve 59:34-39, 2019.© 2018 Wiley Periodicals, Inc.
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