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- Tejas R Mehta, Elham Bayat, and Raghav Govindarajan.
- Department of Neurology, University of Missouri, Columbia, Missouri, USA.
- Muscle Nerve. 2021 May 1; 63 (5): 769-774.
IntroductionAmyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative condition managed with a multidisciplinary approach. Palliative care is important for this approach, but there is a lack of recommendations for the role and involvement of palliative medicine (PM) specialists in multidisciplinary ALS care.MethodsThis questionnaire-based survey assessed the state of palliative care in selective sites that are a part of Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS).ResultsTwenty-seven percent of the sites included palliative care specialists as a part of their ALS clinics and they were introduced to the patients and family by ALS specialists (75.94%) usually at an advanced stage of ALS.DiscussionOur study when compared with other study results having a similar aim showed that there is a variability in the practice of palliative care specialists in ALS clinics. Having evidence-based guidelines will help in the management of ALS patients more effectively.© 2021 Wiley Periodicals LLC.
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