• Ksenia O Gorbenko, Alexa Rae Riggs, Brooke Koeppel, Sydney Phlegar, Marla C Dubinsky, Ryan Ungaro, and Laurie Keefer.
• Mount Sinai Health System, Institute for Health Care Delivery Science, New York, New York, USA.
• J Eval Clin Pract. 2022 Feb 1; 28 (1): 159-168.

BackgroundThe emotional health of patients with inflammatory bowel disease (IBD) is critical to self-management, but has been difficult to elucidate in routine care. Patients are often unsure how to communicate their preferences and concerns to their providers in ways that could directly inform shared decision making. Photovoice is an established research methodology used to give vulnerable patients a voice through photographic expression, but has not been previously used in gastroenterology or in IBD.ObjectiveTo determine the acceptability and feasibility of using Photovoice in an IBD clinic.Patient InvolvementPatients with IBD took photos in response to open-ended prompts, participated in a focus group, and brainstormed ways to share their experience with clinicians.MethodsEnrolled IBD patients received a digital camera, training on basic usage and 10 open-ended prompts related to management of their IBD. Participants completed one-hour in-depth interviews about their photos, which were audio-recorded and professionally transcribed. Three analysts coded transcripts for themes using qualitative analysis software QSR NVivo 11. A subset of patients participated in a focus group about their Photovoice experience. Gastroenterologists were interviewed, using patient photos as prompts, to evaluate feasibility of using Photovoice in the clinic.ResultsEleven patients completed the interviews, with five participating in the focus group. Patients shared and discussed a total of 118 photographs. We identified two major themes: disease burden and patient - provider communication. Five IBD physicians reviewed select patient photos and suggested ways to incorporate Photovoice into clinical practice.DiscussionPhotovoice may be a feasible methodology for patients with IBD and acceptable for providers to use in a clinical setting.Practical ValuePhotovoice may help providers identify patient concerns and make their communication more patient-centred.© 2021 John Wiley & Sons Ltd.

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