• Medicina clinica · Jun 2022

    Quality of life and exercise tolerance tools in children/adolescents with cystic fibrosis: Systematic review.

    • Paula Blanco-Orive, Tamara Del Corral, Patricia Martín-Casas, Guillermo Ceniza-Bordallo, and Ibai López-de-Uralde-Villanueva.
    • Programa de doctorado en Cuidados en Salud, Facultad de Enfermería, Fisioterapia y Podología, Universidad Complutense de Madrid, Madrid, España.
    • Med Clin (Barc). 2022 Jun 10; 158 (11): 519-530.

    IntroductionThis systematic review aims to analyze the validity and reliability of available tools to assess health-related quality of life (HRQoL) and exercise tolerance in children and adolescents with cystic fibrosis (CF).Materials And MethodsA review of observational studies studying the validity and reliability of the tools was conducted. The COSMIN (COnsesus-based Standards for the selection of health Measurements INstruments) guide was followed to analyze the quality of these tools.ResultsA total of 18 studies were selected. Of the eight HRQoL tools, five generic and three specific, analyzed in 14 studies, the Cystic Fibrosis Questionnaire-Revised (CFQ-R) presents the best properties. Of the four tools analyzed to assess exercise tolerance, cycle ergometry and the modified shuttle test are the most valid and reliable.ConclusionsThe CFQ-R, cycloergometry and the modified shuttle test have the best properties for the assessment of children with CF, but more studies are needed.Copyright © 2021 Elsevier España, S.L.U. All rights reserved.

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