• Method Inform Med · Jan 2005

    Security and confidentiality approach for the Clinical E-Science Framework (CLEF).

    • D Kalra, P Singleton, J Milan, J Mackay, D Detmer, A Rector, and D Ingram.
    • Centre for Health Informatics and Multiprofessional Education (CHIME), University College London, Holborn Union Building, Highgate Hill, London N19 5LW, United Kingdom. d.kalra@chime.ucl.ac.uk
    • Method Inform Med. 2005 Jan 1; 44 (2): 193-7.

    ObjectivesCLEF is an MRC sponsored project in the E-Science programme that aims to establish methodologies and a technical infrastructure for the next generation of integrated clinical and bioscience research.MethodsThe heart of the CLEF approach to this challenge is to design and develop a pseudonymised repository of histories of cancer patients that can be accessed by researchers. Robust mechanisms and policies have been developed to ensure that patient privacy and confidentiality are preserved while delivering a repository of such medically rich information for the purposes of scientific research.ResultsThis paper summarises the overall approach adopted by CLEF to meet data protection requirements, including the data flows, pseudonymisation measures and additional monitoring policies that are currently being developed.ConclusionOnce evaluated, it is hoped that the CLEF approach can serve as a model for other distributed electronic health record repositories to be accessed for research.

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