• Leslie J Blackhall.
• Department of Medicine, University of Virginia School of Medicine, P.O. Box 800901, Charlottesville, Virginia 22908, USA. lb9x@virginia.edu
• Muscle Nerve. 2012 Mar 1;45(3):311-8.

AbstractPatients with amyotrophic lateral sclerosis (ALS) have high symptom burdens, including pain, fatigue, dyspnea, and sialorrhea, and they must make difficult decisions about the use of life-prolonging therapies, such as long-term mechanical ventilation. The impact of ALS is also felt by family caregivers who often struggle to meet the heavy physical, financial, and emotional demands associated with the illness. Expert multidisciplinary care may improve both quality and length of life of patients with ALS. However, although advances have been made in the treatment of some symptoms, others, including pain management, remain poorly studied. Involvement of palliative care specialists as part of the ALS multidisciplinary team is recommended, as we continue to work toward improving the quality of life for patients and their families.Copyright © 2011 Wiley Periodicals, Inc.

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