• Medicina clinica · Aug 2022

    Case Reports

    An adapted scale to evaluate insight in Prader-Willi Syndrome.

    • Jesus Cobo, Ramón Coronas, Esther Pousa, Joan-Carles Oliva, Olga Giménez-Palop, and Assumpta Caixàs.
    • Mental Health Department, Corporació Sanitària Parc Taulí - Universitat Autònoma de Barcelona - Institut d'Investigació i Innovació Parc Taulí (I3PT), CIBERSAM, Sabadell, Spain; Department of Psychiatry and Forensic Medicine, Universitat Autònoma de Barcelona, Bellaterra, Spain; Insight Barcelona Research Group, Societat Catalana de Psiquiatria i Salut Mental, Barcelona, Spain. Electronic address: jcobo@tauli.cat.
    • Med Clin (Barc). 2022 Aug 12; 159 (3): 130-133.

    ObjectiveTo develop an insight scale for Prader-Willi Syndrome (PWS), a genetically determined neurodevelopmental disorder with different psychopathological and behavioural problems.MethodologyA sample of 36 PWS patients (58.3% women) attended at the Endocrinological Department of the Corporació Sanitària Parc Taulí (Sabadell, Barcelona) was evaluated. Insight was assessed by means of an adapted version of the Scale of Unawareness of Mental Disorder (SUMD), including three general insight dimensions: awareness of having a PWS, awareness of the effects of psychopharmacological medication and awareness of the social consequences, as well as three items that assess awareness of each particular symptom of the disease (obesity/overweight, excessive appetite and excessive food intake).ResultsThe final Scale included six items and demonstrated an adequate internal consistency (Cronbach Alfa of 0.857 for Caregivers and 0.798 for Clinicians) but a high inter-rate variability. External validation using an Analytical-Visual Insight Scale was adequate.ConclusionsThe Adapted version for Prader-Willi patients of the Scale of Unawareness of Mental Disorder (APW-SUD) showed adequate psychometric properties and it is an easy to administer means to assess insight in this population.Copyright © 2021 Elsevier España, S.L.U. All rights reserved.

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